Monday, November 21, 2016

Matthew


Matthew was delivered on June 14, 2016.





The Haven Network of Rockford and the nurses at Swedish American Hospital we a huge blessing to our family.  Everyone was super supportive.  We had time to hold our son and to grieve our loss.  The Haven provided us with a memory box and these beautiful pictures that we will forever cherish.  

We are sad that we will never have a life here on Earth with our son, but we are happy that he got skip the hurt and pain of this life and was made perfect in Heaven.  We know that we will see him again and will get to spend eternity with him. 

We love you Matthew!

Thursday, November 17, 2016

Walking the Journey: Part 2

I titled this Walking the Journey because we knew the moment we surrendered and let God take control, it would be a journey.  A journey where we would be forever changed.

Every morning I would wake up and wait to see if I could feel my little guy move.  It was a bittersweet moment every morning.  Part of me would pray that he would go to Heaven so that his body would be perfect and so he could run and be happy.  The other part me would give a sigh of relieve every time I could feel him kick.  I no longer was going to the Dr. every week to check for heart tones, but now once a month.  Every time I would go in to the office, I would hear a normal strong heart beat.  I would leave with a smile on my face knowing I had more time with my little guy.

Going to work was my way to keep my mind from wondering about all the what-ifs.  What if he is born alive?  How long will he live?  What if the tests were wrong?  Should I make the hospital do testing before we make any decisions about life support?  Will we let our daughter meet him?  What will we tell her?  The questions were endless.  At work my students would ask do you know if you are having a boy or girl?  They would rub my belly and tell me my stomach keeps getting bigger. For a brief moment I was able to put on a happy face and pretend that everything was normal.

Dealing with the diagnosis of the pregnancy was so much easier now that we chose to submit to God's plan. The biggest change, I started to enjoy being pregnant again.

Flash forward...
June 13, 2016

Through my entire pregnancy I have had Braxton Hicks contractions.  However, for the last day or so I have been unable to feel him move.  The only way that I know that he is in there is when I am having a contraction.  I have a feeling that I can't explain, but I know he is gone.
I called up the Dr. and asked for a heart tones check.

As I suspected, Matthew is gone.

I called my husband to tell him that our son is gone.  Before you wonder why he was not with me...I called him at work that morning and told him I was going to go to the Dr. and that he needed to stay at work. My husband is the most supportive and loving person I know.  In fact through this entire ordeal, we have grown closer than ever.

I went home and we had to decide if we were going to go into the hospital that night or the next day.  The Dr. wanted me to go straight there, but I had to go home and hug my husband and talk to my daughter.

My husband and I decided that we would sit down with our daughter and talk to her. Then, go into the hospital as a family.  He and Ashley would leave me there and he would have some daddy daughter time before leaving her with the grandparents the next day.  This seemed like the best transition for our daughter who had no idea there was ever a problem with her brother.

When we told our daughter I was super nervous.  I sat her sweet 5 year old self on my lap and told her that Matthew was very sick and he died.  The look on her face broke my heart.  Then, in true child form she asked, why is your belly still big?  In her mind Matthew was already in heaven. This answered our question, do we let her see him once he is delivered.  The answer was NO.  He was in heaven and there was no baby in her mind.  She then hugged us and said it's ok, God will give us another one.  I love the faith of a child.  So matter of fact and so innocent.  With those words I knew that God would bless us with another child to love, not replace, but to love and add to our now family of 4.

Wednesday, July 13, 2016

The Beginning of a Journey: PART 1

The moment I found out I was pregnant with my second child.  I was head over heels in love.  However, at our 12 week ultrasound, I felt my world come crashing down.  We were told that our baby, had two birth defects, that were possibly linked to a chromosomal abnormality. We did some blood tests and went home crushed.

That night was awful, brutal, whatever adjective you want to throw in here would probably apply.  We both cried in separate areas of the house.  The next day, I dropped our daughter off at the sitters house and went home. We both decided to take the day off.  After reading many reports on the internet, we began to have hope that our child would be ok. That he or she would not have any chromosomal abnormalities and with some surgeries would pull through and live a normal happy life.

A week later,  I got the call that again rocked my world.  The blood work showed that this baby had Trisomy 18 or otherwise known as Edward's Syndrome.  (Click on the like to learn more about Edwards Sydrome.)  However, after lots of prayer and research again, we were hopeful that the amino would prove the blood work was inaccurate.  After all, even the new blood tests that are supposedly super accurate and diagnositic are not.  When it comes to checking for chormosomal abdormalities, they still have a 60% correct 40% inaccuracy rate..which let's face, is about as accurate as a coin flip.

At 15 weeks we went for an amnio. Before the amnio the Dr. did an ultrasound. However, we did not get the news we were hoping for. Instead, the Dr. found more abnormalities.  They could already see the baby's liver inside the omphalocele, the cyctic hygroma on the neck, was still there and larger than before.  Now, they also could see that the baby had some major skeletal deformities and at only 15 weeks they could already see that the baby had some major heart defects.  The Dr. said, just based upon this ultrasound, he felt confident in saying with almost 100% certinty that this baby had Edwards Syndrome (Trisomy 18).  Not the answer we hoped for.

Once you are given a diagnosis of "incompatiable with life" you are told about your options. Before this I always said, I could never do that.  However, when face with this situation, ending the heartache was all that I could think of.  For us, just considering this brought on increadible sadness.  Trying to control a situation that we needed to give over to God, filled us with constent anguish.  I didn't even realize that I was so sad. I thought I was "handling" it well.  Looking back I was irritably, tired, lacked motivation, and was definetely NOT happy.  Let me paint a picture for you... Imagine, having to go to work (I am a teacher) and put on a happy face and pretend that everything is normal with your pregnancy when little first graders ask about the baby.  Acting happy when your 4 year old daughter hugs and kisses your belly, because you are not going to worry her with adult problems.  2 of your best friends, whom you were very happy for, are pregnant with you. IT was TORTURE!

One day at work everything just became too much.  I could not pull it together and stop crying and decided I needed to go home.  I had a dear friend call me. She talked to me about submitting to God's will, not even knowing that we had considered ending the pregnancy.  She explained to me that God sometimes allows us to walk a path that will break our hearts, but he will use it to change us. She prayed with me.  She made me feel better, but my heart was still kicking and screaming.  I did not want to face the unknown of waiting for "something" to happen on it's own.   I was terrified of the possibilities.

The next day, I went to my OB for a check up.  He asked, if I was going to contact the hospital to end the pregnancy. Of course I became very emotional and said that every time I think about it, I can't stop crying and bring myself to make the call.  I didn't know if and I could go through with it or live with myself after.  He looked me straight in the eyes and said, "Honey, that is God talking to you.  Just let God take care of it!"  These are words I will never forget.  I truly believe that God was trying to speak to me, but I just wasn't listening.  Well...Message received God!

That day my husband and I decided to trust God.  We surrendered the pregnancy and the diagnosis to God.  We knew that he would take care of this in his own perfect timing.  WOW...did we feel a million pounds lighter and instantly felt peace.

I believe that God NEVER does this to people, especially children. A very dear friend and pastor told me, sometimes our bodies just fail.  I believe that God has the power to perform a miracle or will allow you to travel down a difficult path because he sees the bigger picture. I know that through this journey God has our back!  He was walking this with us, carrying us when necessary, and cried when we cried.  He is a good and loving God.  I knew that this trial was not meant to harm us, but would only make us stronger!

(At the time when I first started writing this post, I was 26 weeks.)
I am now 26 weeks.  This little babies heart is beating stronger than ever!  I love to feel his little squirms and wiggles, knowing that this might be all that I get.  I will be his mother for as long as I possibly can.